Sunday, January 31, 2010
It's just NOT FAIR!
It seems these thoughts abound for us lately. Between little Matthew who has been fighting a good and courageous battle against cancer for two and a half years. To Hannah's dad who passed so quickly of cancer this year. To my brother who just had four strokes. Three in one day and then a massive one a few days later. The cause eluded the doctors for a week until they found the narrowed artery leading to his brain that was causing it (at the third hospital he was transferred to). The neurologist told us yesterday that it is very rare that anyone has this and it is the cause of a stroke. As a matter of fact, he said Mark was 1 in 800,000. One in 800,000. WTF?!
He lived, so we are grateful. They finally found the source and feel confident that was it and the strokes will stop, so we are grateful. They put a stint in and he made it past the critical 24 hour mark following that surgery, so we are grateful. But he lost almost all his vision. He has none in his left eye and only a tiny bit in his right, mostly peripheral. The neurologist said this was as good as it would get, there was too much damage. He's only 38. He has not had an easy life to this point, with so many ups and downs and struggles. And now his entire life is altered forever. Everything will change, just as it had been starting to get better. It's just one thing after the other. Why? WHY?!!!
I understand the intellectual side of the good things and how, though altered and not what he dreamed, things can still be okay. I get it. But right now, it's emotional and I am sad, and mad, and pissed off, and my heart is broken for him.
I don't think he knows yet because although he was there when the doctor said it and seemed to react with silence and some tears, he didn't talk about it afterwards. He has the common stroke short term memory loss. So, many things that happen day to day he does not remember from one moment to the next. Like his stint surgery, or what was hooked to his arm, or that he ate, or why something kept inflating around his arm, or asking and telling us the same things over and over. But that will go away we are told. And when it does, when he gets this news, my heart is going to break all over again.
Because, sometimes, it's just NOT FAIR! P.E.R.I.O.D.
Tuesday, January 26, 2010
Just a giggle...
As I ran up to check on the nap boycotting, getting into everything twins, I sent Ethan back to the bathroom to wash his hands well. I reminded him that you need to sing the happy birthday song twice while rubbing soap on your hands, then rinse. When I came back downstairs Ethan was still in the bathroom washing his hands. He was singing the birthday song. As I walked by the door, I heard something that made me stop. Then I backed up and listened to his song outside the closed bathroom door as he went throught he birthday song again, with this line: "...happy birthday dear bathroom..." As I giggled I thought, okay, well... that does make sense... in a way.
Ahhh... my Ethan...
Monday, January 25, 2010
First you say it, then you do it
I was visiting a power plant for a work, since power generation is one of our targeted markets and I am on the team. It was not at all what I thought. Let's just say I didn't dress nearly appropriate enough for such a trip, as it was SO not even close to what I thought (nor anyone with me thought). As it turns out it was a 1940's built plant that has stayed in the 40's. I am talking decor, controls, dirt and all. This particular plant is a peaking plant which means it's only utilized during peak times - really hot or really cold. It was, fortunately, neither when we visited so it was relatively quiet.
With my hard hat, safety glasses,
Then it happened... the plant manager opened the door and stepped outside leading all my co-workers onto the ROOF of the plant. Did I ever mention my mild fear of heights? Okay, it's a roof right - I mean how bad could that be? I'll tell you. The floor from the door on out was METAL GRATE. Large holed metal grate (as in even my somewhat chunky heels could get stuck in it) and oh right, it was also see-freaking-through!). Did I mention it was the seventh floor? Not knowing this was going to be the case when I walked out, I looked straight down (in shock) and my mild acrophobia became major within one fraction of a second.
And that folks is a "first you say it, then you do it" event.
Though there was some momentary attention on me when a co-worker looked back and saw my face (I kept the words in my head - I'm trained enough to maintain some composure no matter the circumstance) and my white knuckled grip as I tippy toed across the narrow and very long catwalk and then climbed flight of stairs (yes, still metal grates), I quickly diverted him. There were a few pockets of solid floor up there between the long catwalks separating the building sections, which helped me calm my nerves some and I did manage to learn some things about this really old power plant and the industry in general. I never did, however, completely recover. When we got inside and walked back down the seven floors of dark non-lit narrow and shallow coal ash covered stairs, I put a kleenex (which I luckily had in my pocket) in each hand and gripped the rails the whole way down. I also made sure I was the last person... again... not wanting to show my real fear or draw attention. I was filthy, but I didn't even care. I lived to tell about it.
I later found out, from my male khaki pant, good coat, office loafer wearing co-workers that I was not the only one shocked by the plant and feeling a bit unprepared. I may, however, have been the only person to actually live Bill Cosby's quote though.
Sigh... live, learn and laugh at yourself.
Sunday, January 24, 2010
The plan that backfired
The boys loved it. For an hour and a half, they ran, they climbed (the structure had at least four levels), they laughed, they yelled, they ran and climbed some more, they even colored (they had tables with crayons and paper out), they had a great time. We ran, we laughed, we climbed (okay only Steve climbed for one rescue mission) and we had a great time. At the end, we were ALL worn out.
Saturday, January 16, 2010
He's a card carrier now...
Thursday, January 14, 2010
Book, thy name is love.
Friday, January 8, 2010
Blogiversary!
Wow! I can't believe it... it's The Moores Six blogiversary! Exactly a year ago today, I launched The Moores Six. Time flies, as it seems like just yesterday.I hope everyone has enjoyed the first year, I know I have enjoyed sharing. This is my scrapbook, our family chronicles, my fun 'me time' and becoming so much more as time goes on. Thank you for sharing journey with us!
Thursday, January 7, 2010
I like big lips and I cannot lie
(okay, if no one else, sometimes I just need to make myself laugh and maybe age myself with a silly rendition of an early '90's song.)
In the meantime... Baby got lips...
Wednesday, January 6, 2010
Tuesday, January 5, 2010
Playing with Photoshop
The last couple days, I tried out some of the actions and skills on a few of my recent favorite photos (read: have been up way, way too late messing with them). Now, I should say I am not a complete virgin to Photoshop, but the work I do with it at work on product is much different than on people (plus my use of it is very minimal). Regardless, some of the things were really easy, some will take a lot of practice and 'an eye' (which between you and me, I'm not sure I have that said 'eye'). Below are some of the photos I messed with, which you will see that I altered them each to varying degrees. I am curious to know if anyone thinks they look better or if they look unnatural. If you view it large you can see my lack of blending which I still have to figure out how to do. I think...at the moment at least... I like them better. Maybe I just need to have them printed to see how they really look (something I need to do anyhow as it has been ages since I printed anything) and then know how much more of the finite details I need to work on (like the blending).
What do you think?
Ethan sticking his face in front of a blower at COSI.
Original:
Same (with minor color changes) but with Steve edited out and background blurred more:Oliver intently coloring.
Original:
Collin laying on the concrete floor in a picnic pavilion which was filthy dirty and hay on it.
Monday, January 4, 2010
Because, it's not 'just a delay'
With the exception of a couple posts, I really gloss over Collin's apraxia. It's not on purpose though. I’ve been thinking about it, for many, many reasons. It started a couple days ago when our lunchtime music ended and Collin was trying so hard to tell me that - I assume at least. I really don't know what he was saying, but he was trying so very intently. He said "heee, haaa, uhhhh, heeee, aaaa..." and waved his hands in the direction of the music source (when he is trying to tell you something, it’s usually with his whole body like this). I said, "are you telling me the music stopped?" and he said: "no! haaaa, uhhhh, aaa, haaa, ahhhh..." I asked several questions and he continued to try intently with much passion to tell me what it was he was trying to tell me, but I never really figured out what he was saying. This is a common frequent daily occurrence. Very, very common. He is trying very hard to express himself, but he doesn't know how to form the words. He does, however, clearly know what he wants to say in his head, as he is a very smart little boy. How frustrating that must be.When I get him out of the highchair after dinner, we have a little thing we do. Basically I say: "Ready," wait for him to repeat that, then I count 1, 2, 3 and say go, waiting after each for him to repeat. After 'go!', I bring him to the floor quickly. He loves it, very motivating (to talk) and fun for him. Every night for weeks we have done this. He has the 'ready' down pretty well (at least you know what it is since it follows me saying it, but it doesn’t sound like ‘ready’) and he is pretty good with saying 'one' (sounds like 'wooon'), but the 'two' and 'three' he cannot do. He watches my mouth intently, I break it into sounds, and finally just try to get a single 't' sound from him, but the T's are just so hard for him. He studies me, but doesn't even try the word. He will try the 't' sound, but it's far from 't.' His brain and mouth just aren't working together. He does say 'go' now, but it's more of an 'hoe' sound.
I was reading a fellow multiple mom's blog the other day and I thought of this and Collin again. Her twin sons have SPD and they struggle with many things due to it. Most people just write off their behaviors or episodes as something else - tired toddler, bratty child, a crier, spoiled, whatever. But that is not what it is, that is not why they struggle at times and it's just unfair to label them incorrectly. Just like this is not 'just a delay' for Collin. He won't just one day realize he can talk and start talking with great articulation (in fact the next issue once words finally start flowing better is sequencing of words) and all will be well in his world. This isn't a delay, it's a disorder. It is a neurological motor planning disorder. I don't say this for you to feel bad for him or for it to sound like I think it's the end of the world and that he will never talk. That is definitely not it at all and I do not remotely believe it is the end of the world, as I know all too well of other horrible diseases in children that ARE in fact the end of the world. However, I still have my pockets of feeling sad, frustrated, worried, a little scared, and many other things regarding Collin's apraxia at times. I am his mom. Don't get me wrong, I am not consumed by it nor do I focus on it constantly. I believe everything will eventually be okay, of course. But I am realistic and know it won’t be any time soon. Regardless, I am allowed to feel all those things… I am.
Sometimes, like the other twin mom blogger, it frustrates me when people gloss over Collin's disorder. Not that I want to focus on it or define him by it. That's definitely not it at all. It's more that when he has an accomplishment, I want to stand and cheer (and have others who are present do the same – it’s quite the motivator to him) - this is hard work for him - new spontaneous words ARE huge accomplishments. And when he has a hard time expressing or is having many frustrations verbally, I want to share as well. I can never tell if people say certain things to me because they are trying to make me feel better or if they don't believe that he has a disorder (but instead just a delay) or what. I really don't know. I guess it all comes down to the fact that until you have the experience yourself, it’s hard to know what it’s like. It’s hard to understand what it is and the true struggle or implication. It’s hard to know what to say.
Because I share this blog with my fellow multiple moms, I have decided to talk more about Collin’s apraxia. One, to chronicle his journey for him (and me). Two, to share the ups and downs (because sometimes I need to do this). Three, because there might be another mom who reads this who has a child they suspect has this disorder or know has this disorder and if so, there is comfort in knowledge, other’s experiences and finding a ‘friend’ in the same boat.
Just two weeks ago when I picked Ethan up from school on the first day of my vacation, I found out that there is an Apraxic child in his room. I have her mom’s information and got to talk to her briefly before the twins melted down. I felt comforted by this and am excited to find out more about their journey. She indicated her daughter was in speech therapy three four hour days a week, at Ethan’s pre-school two four hour days and then in special needs pre-school the other three days and that she had a lot to share with me. She also gave me that knowing hug and said “I understand how you feel” the moment she found out we shared this common disorder among our children, without me even saying a word regarding anything. She just knew based on her own journey and how she felt in the beginning.
The new year has me, as always, thinking about many things and making lofty goals. So, with that in mind and the desire to document this journey more, as well as share more with other moms and my own family and friends, you’ll probably see more posts on apraxia. And maybe some other things too.
Thank you for reading my posts (especially if you made it all the way through this one), thank you for your support and your comments/emails and thank you for jumping on the ride with us!
Sunday, January 3, 2010
The reluctant transition
Saturday, January 2, 2010
Snow! (and lessons learned)
It took me AN HOUR to get them all dressed to go out, we were out for FIVE MINUTES. No joking, they have layers of clothes on, then snow overalls, coat, hat and multiple fights...er... attempts at gloves. By the time I would get one dressed, one of the twins was undressing themselves and then running from me giggling. Or there was the all dressed and then decide it's the perfect time for their morning poo (just telling it like it is). Of course this made getting myself ready quick, I was so hot and sweaty from getting them ready that I didn't need to bundle up.
Two year old toddlers do NOT like gloves. Will not wear them no matter how tight they are put on or how cold the snow is. Mental note: get working on non removable gloves for toddlers.
Two year old toddlers will CONTINUE to touch the snow with their bare hands even after the initial painful lesson. Seriously, non removable gloves for toddlers people... any ideas?
Five year old boys will eat anything (but what I want eaten) and two year old mini me will follow suit. Ethan decided to get a mouthful of snow to eat, so of course Oliver had to follow.
When two year old toddlers are over the snow, they are OVER the snow. I needed a second person to help me get them inside and undress them as I was not near quick enough for their liking. Gave me a whole new appreciation for the Jetson's suits - remember they just came on and off automatically. Hmmm....
Five year old boys, in some respects, are a lot less high maintenance. I'm liking five so far. Ethan was a great sport about me taking the twins in after just shy of five minutes (though I did warn him we would only be out for a very short time - since they refused gloves). He stayed out and had a blast, making angels, jumping on the trampoline covered with snow, filling sand buckets with snow, etc. It was so cute to watch him. I can't believe how quickly he is growing up and what a little boy he is becoming. It makes me proud and sad at the same time. However, like I remind him, he will always be my first little baby.

Friday, January 1, 2010
They say...
We took the boys to COSI today. They had a blast running as fast as their little legs could take them. Exploring everything and wearing huge smiles. I think if the saying were to be true, it'll be a great year for them (and I hope it is). Here are some photo highlights of our trip:



Happy New Year!
Thursday, December 31, 2009
son up to son down
Wednesday, December 30, 2009
Wildlights
Ethan seemed to really love all the lights - there were more than I remember from the last time we went (a couple years ago). The twins even really seemed to enjoy the lights - or "ights" as Collin calls them. My personal favorite were the lights around the pond set to motion while the Carol of the Bells by Trans Siberian Orchestra played. Very cool.
Tuesday, December 29, 2009
I had a dream...
Steve and I took the boys to a local park Sunday evening, which I know in the past has had a beautiful sleigh all decorated with plants and bows and all. I had this dream of getting the boys standing next to it looking all cute and having some really nice Christmas photo of them. Well, the sleigh was not there... and the boys did not stay still for more than a nanosecond the entire time. Without Steve, in fact, I would have lost one of them as there was always one running off somewhere (fortunately this is a park that has one parking lot, so cars were not a concern) down one of the many garden paths.
See the speed?
Steve, I think, actually thought we could get a good photo too. I even decked them out in cute sweaters thinking I could slip their coats off for a few minutes (it was very cold) while they posed all cute for me... but that was just not even in the cards (if we could catch them to get it off, we would never catch them to put it back on). I even thought that if I said "smile" that they would smile a real smile, even given the fact that they never do any other time, especially Ethan. Case in point, "Smile pretty Ethan"...... uh... no comment.
In the end, these two are the best of what I got (yes, nothing basically)...
Other than my huge photo disappointment, the boys had a fabulous time running and running and running, oh and running some more. Lots of giggles, exploring and smiles. And that, is really what it's all about. Wish I could make photos from the images I captured in my memory today - to share with all of you.



